I think I must have had a football size cyst early, on as my mum trained as a nurse and remembers seeing one removed that was that size. Then I had my 12 week scan and they found a grapefruit size cyst 11cm by 15cm. I was very big at just 6/7 weeks with a bump, which was odd but I thought nothing of it. I am not medical so can't comment on the medical details of what might be happening but I just wanted to tell you about my first pregnancy as I had a massive cyst but it was no problem in the end. I do know, however, that the current ‘resources’ for gynaecological issues in Ireland are simply unacceptable.Hello ladies, sending big hugs and sorry to hear you are having a bit of a stresssful time. ![]() I don’t know what my endometriosis will hold in store for my future. I am only one of the thousands of women across the country who have to bear the consequences of the country’s failure to address the resourcing of gynaecological illnesses. ![]() A family friend of mine who also suffers with endometriosis encouraged me to get an AMH test to check my ovarian reserve as it was likely damaged from the heat of the surgical tools during my operation, and that I may need to consider freezing my eggs if my egg count is low – something that was not mentioned to me by any of medical practitioners. I am fortunate in that I was diagnosed extremely quickly in comparison to other women who suffer with the condition, and at the age of 23, which allowed me to undertake hormone treatment to try to suppress my endometriosis symptoms and preserve my fertility. As a result of a clerical error I was not taken off the wait list, demonstrating that if I had not been admitted through A&E I would’ve been waiting at least a year for my surgery – therefore jeopardizing my physical health, mental health and fertility. In May 2018, I received a call to say that I would be called for my surgery soon. While I can’t speak highly enough of the hospital staff that I encountered (surgeons, nurses and all staff alike), I could already see myself slipping down their list of priorities once I was not in immediate need of attention. I was told I would need follow-up surgery to remove the traces of endometriosis on my right side however, this would be an elective surgery. If they hadn’t, I would have lost my left ovary.Īfter my operation, my quality of life improved exponentially. Thankfully I had very skilled surgeons who gained control of the bleeding and managed to stop the hemorrhaging. This complicated the procedure and I lost a lot of blood during surgery. Additionally, my cyst had begun to leak since my last ultra sound. Although this made it easier to remove, it also meant that I could have been at risk of it twisting around my ovary and cutting off the blood supply, meaning that the ovary would then wither and die. It transpires that despite being caused by endometriosis, my cyst was free-moving. I very luckily got an empathetic and understanding consultant, who assured me I wouldn’t be sent home until I had my surgery. After months of taking strong painkillers morning, I am not an outwardly emotional person, but it was at this point that I burst into tears. She then spoke about possibly sending me home with pain management and putting me on a waiting list to get the cyst removed. A junior doctor came to see me the next day and explained that cysts due to endometriosis are generally really sticky and hard to remove so I didn’t need emergency surgery, as I wasn’t at risk of the cyst flipping and cutting off the blood supply to my ovary. To cut a very long story short, in May 2017, after an 11 hour wait, I was admitted through A&E to be seen about my cysts. I was referred to a consultant who very bluntly told me I had endometriosis and at the time I didn’t really understand what the implications of this disease were. The results of my ultrasound showed I had a 9cm cyst on my left ovary (basically the size of a grapefruit) and a 3cm cyst on my right ovary however, as this additional cyst was not causing me any pain and was small in size, it was not of concern. My GP said the pain sounded like a functional ovarian cyst but that an ultrasound was needed to be certain. ![]() Little did I know, this would be a frequent occurrence over the next six months.Įventually the pain got to the point where I knew something was wrong and I needed to see the doctor. At first I ignored it, but the pain worsened so much that I just had to lie down with a hot water bottle and grin and bear it. Having suffered badly with period pain before going on the pill, I was well used to bad cramps, but this was a whole new level of sore. It was like nothing I had ever experienced before. In November 2016, I was in my boyfriend’s house when I got an intense ache in my lower abdomen. I can vividly remember the first time I got my pain.
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